The ultimate goal of The Dinosaur Trust is to fund research to find better treatments and eventually a cure for pulmonary arterial hypertension.
As a family affected by this disease, our fight is driven by necessity.
Our experience means we know what it’s like for families facing the same prognosis. We know there are parents and children today going through similar experiences to ours. This is why the Dinosaur Trust exits, to provide support, information and hope to other families, helping them through difficult times.
We believe that the research funded by the Dinosaur Trust will be instrumental in developing better treatments and better ways of dealing with pulmonary arterial hypertension. To learn more about the research projects, (past and present), funded by The Dinosaur Trust please visit the research section of the site.
In order to achieve our goals we have committed to the following:
Raise funds for research-
We have have received some generous donations from our supporters in recent years and we are incredibly grateful to each and everyone of them. We plan to expand our supporter base to accelerate the pace of research into treatments. We pledge that 100% of your support funds research into treatments and finding a cure for pulmonary arterial hypertension. There are many ways that we raise funds and plenty of ways to get involved.
Represent the patients
We work closely with our research partners to be the voice of the patient. Jamie, Chairman of The Dinosaur Trust has worked tirelessly over the last few years to build strong relationships with the Pulmonary Vascular Research Institute, Great Ormond Street Hospital and The University of Cambridge.
Jamie has recently become the Patient Representative for the PVRI’s Innovative Drug Development Initiative. Find out more about Jamie’s Patient Representative Role
Raising awareness
Pulmonary Hypertension is classed as a rare disease. Despite affecting people of all ages and socio-economic backgrounds, including many fit young athletes, this potentially fatal illness is often mis-diagnosed or goes undiagnosed. Treatments and availability of medications varies around the world. We are keen to raise awareness of this disease in the hope that it improves the quality and accessibility of treatments for everyone with PH, wherever they are in the world. Read more about our work to raise awareness
Building a global PH community
We’re working on building an international network of support and expertise, partnering with organisations, charities and trusts to help those living with PH from around the globe. Find out more about our growing global community.